Living and dying with motor neuron disease
I’m slightly stuck for words, so much has happened in the last month, but for now we seem to be leveling off again.
Neil’s last post listed the latest accessories our home has had to accommodate. That was the 21st of July, just short of a month ago. He mentioned the bed rail. Since then the rail has been and gone, Continue reading ‘Not That Unlucky’
It’s 3o’clock in the afternoon and I have managed to get both Oscar and Neil to have a nap. I have a baby monitor and a walkie talkie with me. I was reminded yesterday morning, of the many parallels between the two of them in, for want of a better word, their ‘progression’. Continue reading ‘‘One Finger One Thumb, Keep Moving….’’
Sorry, this has to be very brief, as it’s late at night and I don’t get enough sleep as it is! Just wanted to drop a quick explanation as to why you’ve not heard anything recently.
Unfortunately, Neil has now lost the ability to type. He is still able to write via some very clever voice recognition software, but in order for this to work, he needs the house to be quiet! This is impossible….
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